Pamela Mace


Pam Mace was diagnosed with FMD in 2001 after dissecting both of her carotid and a left vertebral artery in 2000. In 2004 she became a volunteer of FMDSA which was just incorporated in 2003. Pam accepted the invitation to serve on the Board of Directors of FMDSA in 2005 and was successful in getting FMD listed on the National Organization of Rare Diseases. In 2006 she was able to get the National Stroke Association to recognize FMD as a cause of stroke and then a year later the American Stroke Association, these three accomplishments are what lead to our very successful awareness campaign and an increase in patient diagnosis.

Pam was elected President of FMDSA in 2006 and in 2009 accepted the Executive Director position. She continues to work passionately as a patient advocate and at developing and executing the FMD awareness campaign and programs

Pam has more than 20 years experience as a registered nurse working primarily as an emergency room/trauma nurse. She also has experience working in the Cath Lab, on a Critical Care Transport Team and Intensive and Coronary Care Units. Pam’s experience also includes working with children, individuals with developmental disabilities and as Clinical Director of an Emergency Department in Chicago. Pam continues to volunteer her time to help others including her participation in a medical mission in Haiti.