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My name is Pam Mace,
and like most of you, I have Fibromuscular Dysplasia (FMD).
I was first diagnosed with bilateral carotid artery dissections
after experiencing stroke like symptoms from a TIA (Transient Ischemic
Attack or ministroke). I later formed carotid aneurysms that
led to several surgical procedures, and a further diagnosis of renal
FMD.
With
so little information and difficult experiences to deal with, those
of us with FMD have evolved into our own little family and depend
on each other for support and an understanding of the disease.
In honor of our FMD family, I wanted to create a bracelet that would
symbolize the unity among us and raise awareness about FMD.
Together with Katie Janoch, jewelry designer, FMDSA has created
a bracelet that we feel reflects the diverse challenges we face
with FMD and the brilliant glimmer of hope for all of us with this
disease.
Beads were chosen
in the design of this bracelet to represent the “string of
bead” appearance of affected arteries that is classic for
FMD. Brilliant blue to signify the vascular system and a tree
charm to represents both the branches of your arteries affected
and life itself. A charm stamped with FMD makes the bracelet
exclusive to FMDSA and will serve to raise awareness about this
disease. We proudly offer this item as a symbol of FMD awareness.
I hope you join me in purchasing and wearing
this very special “string of beads” to unite
all of us who support FMD awareness.
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Sincerely,
Pam
Mace,
RN
FMDSA Board Member |  |
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