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FMDSA Annual Conference 2010


3RD ANNUAL FMDSA CONFERENCE
(Preliminary Agenda - Subject to change)

CLICK HERE TO REGISTER

May 21st - May 23rd, in Cleveland, Ohio
Doubletree Hotel Downtown

Please note: Each individual guest must make their own reservations by calling 1-800-222-TREE or 216-241-5100. The final cut off for reservations will be April 21, 2010. You must identify yourself as a member of the FMDSA.

Registration fee: Members - $50.00; Non members - $75.00

**Friday May 21st - Registration / Meet & Greet: 5:30-7:30pm

**Saturday May 22nd - Meeting and Conference: 8am - 4:15pm


**Saturday evening - Drawing for raffle items & social

Confirmed Speakers:

Jeffrey W. Olin, DO, FACP, FACC
Professor of Medicine
Director, Vascular Medicine
Zena and Michael A. Wiener Cardiovascular Institute
Mount Sinai School of Medicine
New York, NY

Heather L. Gornik, M.D.
Medical Director, Non-Invasive Vascular Laboratory
Cleveland Clinic Heart and Vascular Institute
The Cleveland Clinic Foundation
Cleveland, Ohio

Leopoldo Pozuelo, M.D.
Psychiatry and Psychology
Section Head, Consult Liaison
Cleveland Clinic Foundation
Cleveland, Ohio

Karen Broer Ph.D.
Cleveland Clinic Main Campus
Psychiatry and Psychology
Cleveland Clinic Foundation
Cleveland, Ohio

Kevin Meyers, M.D.
Pediatric Nephrologist
Assistant Professor of Pediatrics
The Children's Hospital of Philadelphia and
University of Pennsylvania Philadelphia, PA
(It's been confirmed that Dr. Meyers will be attending our Annual Meeting in May
and participating in the panel discussion)

Patrick Willems, M.D., Ph.D
Geneticist
Gendia Network
Belgium

Nazli B. McDonnell M.D., Ph.D
Medical Genetics
Laboratory of Genetics
National Institute of Aging/NIH
Baltimore, MD

Additional speakers/details will be added, once confirmed.
**** PLEASE NOTE: Registration will open March 1st ****


FMDSA Annual Conference 2009



The 2009 FMDSA conference in Cleveland, this past June 13th was a huge success. In addition to attending the conference, many patients/members also enjoyed site seeing in Cleveland and seeing the Cleveland Indians play, and of course a stop at the Rock and Roll Hall of Fame.

It was also an opportunity for many patients to be seen for a consultation/assessment at the Cleveland Clinic FMD Clinic, which was booked solid with out of town patients the week of the conference, including some from out of the country.

Guest speakers included Dr. Jeff Olin, Dr. Heather Gornik, Dr. Kevin Meyers, all members of our Medical Advisory Board, and Dr. James Froechlich, who discussed the new patient registry.
We would like to thank them for their informative presentations. Dr. Olin once again held our attention with a comprehensive lecture about what is known and what isn't known about FMD. Dr. Gornik's session offered patients the opportunity to participate interactively in "FMD Jeopardy" via an audio response system. Dr Meyer's presented interesting insight to pediatric FMD, for the first time at an FMDSA conference. After each speaker finished, they allowed time for a question and answer period with their audience. The time passed quickly and each presentation was very enlightening.

A big thanks also to all patients, family members, and medical personnel who attended our 2nd Annual Conference, hosted at the Wyndham Hotel in downtown Cleveland. Your support of this event is greatly appreciated and sends a message about how important it is to spread awareness about Fibromuscular Dysplasia. This year's conference also included a photographer from the Wall Street Journal who was on hand to take photographs for the June 27th front page story on Fibromuscular Dysplasia.

Friday night's social was a great way to meet new people and reconnect with old friends. Saturday was a full day starting at 8am with breakfast, followed by conference presentations until 3pm, and ending with a social and raffle that was a fun way to spend the last of our time together.

Thank you to all of our sponsors and volunteers:

Our Sponsors

Cleveland Clinic Foundation
Molly Clark & Kay Tanner
Tana Busch, DDS
Martha Clark
Honigman Miller Schwartz and Cohn LLP



Thank You For Your Donations
Alluvit Construction
Applebees
Artist for a Day
David & Cheryl Bailey
Charles Scott Salon
Molly Clark & Kay Tanner
Carla & Randy Congdon
Annette & John DesRochers
James DesRochers
Stan & Karen Fettig
Rich & Susan Gould
Ronni Herrick
Rebecca Hoetgers
Lauren's Hope
Susan Leone
Jane Lorenz
Pam Mace & Bob Kubic
Phil & Rochelle DesRochers-Moreau
Alaina Murley
Peace Unique
Mimi Peterson
Pro Plum
Dr. Bradley & Terri Provost-Daar
Jen Robinson
Rock and Roll Hall of Fame & Museum
The Rocky River Pub
Carol Rogers
Bob Smiddie
Kellie Smiddie
Dr. Michael & Kari Ulrich
www.vlingvling.com
Janet White
Maureen Womack
Robert & Lisa Zborowski


A Special Thanks to our Conference Committee

Cheryl Bailey
Kim Blakemore
Rochelle DesRochers-Moreau
Chrissy Gribble
Pam Mace
Terri Provost-Daar
Kellie Smiddie

Photos of the event can be viewed in our photo section here.
(we are currently awaiting approval/signed waivers before the photos can be added to the site, and apologize for the delay but want to respect the privacy and wishes of all of those in attendance).

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