Welcome to FMDSA                   

The Fibromuscular Dysplasia Society of America is a public health charity working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD). We do this by building awareness of FMD, funding research activities, providing patient support, and educating patients and the healthcare community.  Learn more about our organization. 

 

The 2018 FMDSA Annual Meeting, May 19th in Cleveland, Ohio

The Annual Meeting brings the FMD community together to discuss the most recent data and pressing issues with FMD. It also gives patients the opportunity to meet others with the disease and many lifelong friendships have been formed. Some of the topics being covered during the meeting include: FMD basics, sudden coronary artery dissection and FMD, treatment of aneurysms and dissecti

ons in patients with FMD, pulsatile tinnitus, hypertension and the genetics of FMD.

For more information and links to topics covered, click here.

We hope to see you there!

We would like to thank all of our sponsors for their support!

 

Presenting Sponsor - Massachusetts General Hospital 

 

 

 

 

 

 


Platinum Level Sponsor - Baptist Hospital of Miami 

 

 

 

     

 

 

 

 


 

Gold Level Sponsor -

     Cleveland Clinic

 

 


Silver Level Sponsor -                                            Bronze Level Sponsor -

University of Michigan Health System                                   Emory Healthcare

 
 
 
 
 
 


 

FMDSA is an Official Charity of the Cleveland Marathon.  Please consider running as part of our team In 2018.

Please be sure to join our team:RUN4FMDSA. To receive 10% off please use code:FMDSACHARITY10.

 

 

We are putting together teams of runners and walkers to participate in the marathon, half marathon, 10K, 5K and kids run. FMDSA is also looking for 25 volunteers to work at a water station for the 2018 marathon. All 25 people will stay together and we can be as creative as we would like with our water station. For more information please contact volunteer Iva Prcela at iva.prcela@fmdsa.org  

 For updates, information and to register for the 2018 Cleveland Marathon, click here

We would like to encourage our runners to support or create a fundraising page; it's fast, easy and secure. To create your page, click here

                                                  


 

Congratulations to doctors Heather Gornik, Jeffrey Olin and Esther Kim who Co-Chaired the Second International Fibromuscular Dysplasia Network Symposium in Cleveland Ohio on May 18th-19th 2017. 

 

 

 

 

 

 

 

 

 

 

This meeting gathered key researchers and clinical thought leaders in the field of FMD for a state-of-the-art review of the existing knowledge base and current research activities related to FMD in the United States and abroad. A large proportion of the meeting was focused on the creation of an FMD research network, comprised of four focused working groups on various aspects of FMD research (epidemiology, genetics, research registries, and imaging and clinical therapeutics).

To view all abstracts presented and learn more about the Symposium and working groups, please click here.

 


 

Supporting the Rare Disease Community

 FMDSA is a member organization of NORD. The National Organization for Rare Diseases and also a partner of the RARE Project, both organizations represent rare diseases from all over the world.

With Support From...


 

FMDSA's Amazon Wish List

The Amazon Wish List allows organizations such as ours to defray the cost of many items we would otherwise need to purchase, and allows benefactors the opportunity to make a donation to FMDSA in the form of an item that we need in our office or for a conference.  Click here to register for amazon smile and to search through our "wish list" and find an item that you would like to donate to FMDSA. It is that simple; just add to your shopping cart, pay, and Amazon ship your donated item to FMDSA.  Thank you in advance for helping support FMDSA via our Amazon.com wish list. Please note that it has come to our attention that Amazon is not sending a gift notice with your orders so for now unless you contact us directly we have no way of knowing who sent the items. We are working with Amazon to resolve this issue.  Thank you for your donations!

 

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