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Upcoming Events
Mystery Diagnosis
The Mystery Diagnosis episode detailing Pam Mace's experience of being diagnosed with Fibromuscular Dysplasia aired on the following dates on Discovery Health Channel (Eastern Standard Time). Please note that the episode on FMD airs after the episode entitled "The Woman Who Couldn't Stop Burping". The show is 60 minutes in length.
Check your local listings to find out when this episode air on your station
(MD shows tend to be replayed quite often on some stations).
Please click the image below to visit the Discovery Health Channel site: |
FMDSA 3rd Annual Conference 2010
We are pleased to announce this year's conference will be held May 21st - May 23rd, in Cleveland, Ohio.
We heard your concerns/feedback and made the decision to remain in the downtown area for patients who need to be seen at the Cleveland Clinic.
The conference will be held at the Doubletree Hotel. This hotel has a pool and parking is free! Rooms will be $89 a night when you mention the conference. More details about the conference available here: FMDSA CONFERENCE 2010
Doubletree Hotel Downtown
1111 Lakeside Ave. E | Cleveland , OH 44114
Direct: 216-241-5100 | Fax: 216-241-1831
www.clevelanddowntownlakeside.doubletree.com
Please address questions or concerns to Kellie at kellie.smiddie@fmdsa.org
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Fibromuscular Dysplasis PSA
Thank you to Terri Provost-Daar and Brad Daar as well as Dr Jeffrey Olin for their efforts in having a highly effective Public Service Announcement made about Fibromuscular Dysplasia. So far this PSA has been shown on local cable stations in CT and Ohio and is available for anyone who wants to help promote awareness about Fibromuscular Dysplasia. If you would like to approach your local cable television station or area service group or hospital to show this informative clip, please contact Chrissy Gribble at chrissy.gribble@fmdsa.org for more information.
Please click the image below to view the PSA:
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Patient Registry
The FMDSA has signed the Patient Registry contract and we have received the signed contract back from Michigan.
This is going to be such a great benefit for FMD patients as well as the advancement of knowledge and treatment options for those afflicted by this disease. Check our patient registry page for more information.
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