Upcoming Events


The 13th Annual Meeting on Fibromuscular Dysplasia is being held in Cleveland, Ohio on May 16th, 2020

Each year we gather the leading specialists to come and speak about FMD. This is one of the most beneficial meetings anyone interested in learning more about FMD can attend. During the meeting you will learn about the most recent developments in FMD management along with hearing specialist discuss their most recent understandings of the disease.

Not only will you hear from specialists, but you will also be able to speak with them directly in open panel discussions. These open panel discussions give you the opportunity to ask specialists anything that may not have been answered during the presentations. 

You will also have the opportunity to meet others with FMD. If you or a loved one has FMD, it can be hard for others to understand things you may be dealing with in relation to the disease. Being able to connect with others who can relate, can help with your ability to cope with FMD by know you're not the only one and others may provide you with their tips and trick for dealing with certain issues (always consult with your physician prior to applying any of the recommendations). 

The meeting is Saturday May 16th in Cleveland, Ohio (8am-4pm) and there will be a meet and greet the evening of Friday May 15th.

Both events take place at the Crown Plaza Hotel in downtown Cleveland, Ohio ( 216-615-7500 mention FMDSA). For more details and to register click here.

Topics inlude:

  • What is Fibromuscular Dysplasia?
  • Treatment of Cervical Artery Dissection and Intracranial Aneurysms
  • Identifying the Patient Likely to Benefit from Renal Artery Angioplasty
  • Pulsatile Tinnitus and Current Treatment Options
  • Spontaneous Coronary Artery Dissection: treatment, exercise and the iSCAD Registry
  • FMD and SCAD research update
  • United States FMD Registry: what has it taught us?

Speakers include:

  • Dr Jeffrey Olin - Mt Sinai, New York
  • Dr Heather Gornik - University Hospital, Cleveland, Ohio
  • Dr Santhi Ganesh - University of Michigan
  • Dr Erika Woodson - Cleveland Clinic, Cleveland, Ohio
  • Dr Shazam Hussain - Cleveland Clinic, Cleveland, Ohio

(We are still finalizing speakers and topics...stay tuned!) Event speakers and details are subject to change.

***Please note that the Cleveland Indians are in town all weekend and the Cleveland Marathon is expected to bring in over 15,000 attendees. Transportation and restaurants should be booked with advance notice.

FMDSA is an Official Charity of the Cleveland Marathon.  Please consider running as part of our team in 2020.

Please be sure to join our team:RUN4FMDSA.

We are putting together teams of runners and walkers to participate in the marathon, half marathon, 10K, 5K and kids run. FMDSA is also looking for 25 volunteers to work at a water station for the 2019 marathon. All 25 people will stay together, and we can be as creative as we would like with our water station. For more information please contact volunteer Karen Prcela @ karen.prcela@fmdsa.org  

For updates, information and to register for the 2020 Cleveland Marathon, click here

We would like to encourage our runners to support or create a fundraising page; it's fast, easy and secure. To create your page, click here