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About the Fibromuscular
Dysplasia Society of America
The Fibromuscular Dysplasia Society of America is a public health charity working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD). We do this by building awareness of FMD, funding research activities, providing patient support, and educating patients and the healthcare community.
We are honored to share our Guide Star Platinum Seal of Transparency.
Get Involved and
Be Part of Our Organization
The Fibromuscular Dysplasia Society of America is a public health charity working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD). We do this by building awareness of FMD, funding research activities, providing patient support, and educating patients and the healthcare community.
News & Events
What you need to know about Coronavirus Disease?
FMDSA recommends FMD patients follow the guidelines of the CDC (https://www.cdc.gov) and speak with your GP about your personal medical history.
Please also see a message for our patients from Dr Gornik and Dr. Olin about Covid and about the Covid vaccines
FMDSA Annual Conference, May 19-20, 2023
This year’s conference will be in-person and we’ll be celebrating FMDSA’s 20th year! Join us in Cleveland for this special annual conference. Register here
Watch the video presentations from our December 2021 Annual Conference
The FMDSA 13th Annual (Virtual) Conference – Saturday, December 4th, 2021
The Cleveland Marathon
The FMDSA was selected as a Charity Partner by the Cleveland Marathon committee and Union Home Mortgage. #Run4FMDSA on May 20-21, 2023.
A big thank you to our runners and sponsors for Team FMDSA! The marathon was a great success. Thank you also to our volunteers!
Testimonials
FMDSA has been the catalyst for engaging the medical
community to pursue research!
The amount of research and articles published in the last ten years correlate with the founding of FMDSA. Thanks to their constant presence at medical conferences, grand rounds and push to share awareness via various media outlets and social media , FMD is now a recognized vascular disease. With the establishment of the FMD Patient Registry, funded by FMDSA research is in full force, offering hope and answers for those affected by FMD. Thank you to this wonderful organization!
- Lisa, Member
Without FMDSA my local doctors would be lost and so would I !!!!
My FMD specialist is located 6 hours away and nobody in my local area knows anything about it. FMDSA has sources that allowed my primary physician to understand what I was diagnosed with. Personally, it has allowed me to connect with other people with this rare disease. It has allowed me to a gain a better understanding of the disease and how it ties to other conditions I have. It serves as the go to for all FMD patients and we would be lost without them!
- taycar49, Donor
Thank you FMDSA, your tireless work to improve knowledge of FMD through the research registry, physician and patient education is appreciated by patients and other FMD and SCAD patient organisations worldwide.
You are a leading light, that can be relied on for accurate and up to date information to help those searching for support, more information, a knowledgeable physician or centre, or to take part in research. It’s greatly appreciated that you attend scientific and medical conferences to advocate for our community and always share any new findings as they are published. #fmdawareness #fmdstrong #facesoffmd
- gratefulclientoverseas, Volunteer
I am so glad to have met lots of great people through FMDSA and I'm glad to be a support group volunteer for them.
I was diagnosed with FMD in 2015 after two spontaneous coronary artery dissections (SCADs) in 2012. I didn't know anything about FMD, but heard about FMDSA from a fellow SCAD survivor. FMDSA is such a great resource, not only for newly diagnosed patients, but also patients that have had the disease a while. They truly care about helping patients and caregivers learn more about the disease and sharing knowledge among doctors.
- cckime6565, Client Served
The annual conferences are incredibly helpful and so fun to meet others with FMD.
I have been proud to support FMDSA since I was diagnosed in 2006. My quality of life is great and I know research generated by the registry and support from the FMD clinics is a large reason why. The annual conferences are incredibly helpful and so fun to meet others with FMD. Thank you FMDSA.
- Carol Boissoneault R., Volunteer